{"id":609,"date":"2026-01-21T11:37:40","date_gmt":"2026-01-21T14:37:40","guid":{"rendered":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/?p=609"},"modified":"2026-01-22T14:12:21","modified_gmt":"2026-01-22T17:12:21","slug":"guia-completo-sobre-a-ame","status":"publish","type":"post","link":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/guia-completo-sobre-a-ame\/","title":{"rendered":"Guia completo sobre a AME"},"content":{"rendered":"<p style=\"font-size: 1.2em; text-align: center;\">Este guia foi feito para ajudar voc\u00ea a entender o diagn\u00f3stico de AME e agir com mais seguran\u00e7a.<br \/>\nInforma\u00e7\u00f5es pr\u00e1ticas, baseadas em fontes confi\u00e1veis, para orientar sua jornada desde os primeiros passos.<\/p>\n<p><!-- DIV BRANCA ++++++++++++++++++++++++++++++++ --><\/p>\n<div style=\"background-color: #ffffff; padding: 10px 30px;\">\n<div class=\"container padding-padrao\">\n<div class=\"row\">\n<div class=\"col-md-6\" style=\"padding: 20px;\"><img decoding=\"async\" class=\"img-fluid\" src=\"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-content\/uploads\/sites\/29\/2026\/01\/img-guia-ame-ebook-ame.png\" alt=\"Card image cap\" \/><\/div>\n<div class=\"col-md-5\" style=\"padding: 10px 10px;\">\n<p style=\"line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\">Conte\u00fado: <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Entendendo a AME <\/b><br \/>\n<span style=\"font-size: 1em;\">Aspectos gen\u00e9ticos e tipos da doen\u00e7a<\/span> <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Diagn\u00f3stico da AME <\/b><br \/>\n<span style=\"font-size: 1em;\">Sinais de alerta e processo diagn\u00f3stico<\/span> <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Tratamentos e Cuidados <\/b><br \/>\n<span style=\"font-size: 1em;\">Abordagens terap\u00eauticas e equipe multidisciplinar<\/span> <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Direitos e Acesso ao Tratamento <\/b><br \/>\n<span style=\"font-size: 1em;\">SUS, planos de sa\u00fade e legisla\u00e7\u00e3o<\/span> <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Vivendo com AME <\/b><br \/>\n<span style=\"font-size: 1em;\">Qualidade de vida e apoio familiar<\/span> <\/span><\/p>\n<p style=\"font-size: 1em; line-height: 1.1em; padding: 10px 30px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><b style=\"color: #0078d4;\">Perguntas Frequentes <\/b><br \/>\n<span style=\"font-size: 1em;\">Respostas para d\u00favidas comuns<\/span><\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<section id=\"section-to-display\" style=\"margin-top: 30px;\">\n<div id=\"register-form-section\" style=\"background-color: #0078d4; padding-bottom: 0px; background-image: url('https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-content\/uploads\/sites\/29\/2026\/01\/bg-azul-linehearts.png'); background-position: center top; background-repeat: repeat-y;\">\n<div class=\"container\">\n<div class=\"row\">\n<div class=\"col-md-11 text-center padding-header\">\n<p class=\"padding: 10px 50px;\" style=\"text-align: center;\"><span style=\"color: #ffffff; font-size: 2.2em; font-weight: bold; line-height: 1em;\"><br \/>\nReceba gratuitamente um guia acolhedor<br \/>\ne confi\u00e1vel sobre AME<\/span><\/p>\n<\/div>\n<\/div>\n<div class=\"row\">\n<div class=\"col-md-9 col-md-offset-1\">\n<p><span style=\"font-size: 1.5em; font-weight: 500; line-height: 0.8em;\"><span style=\"font-size: 1.5em; font-weight: 500; line-height: 0.8em;\"><br \/>\n<script src=\"https:\/\/js.hsforms.net\/forms\/embed\/6331333.js\" defer=\"\"><\/script><\/span><\/span><\/p>\n<div class=\"hs-form-frame\" style=\"height: 392px;\" data-region=\"na1\" data-form-id=\"7e76a055-f602-47a7-8a47-016c1b2a93da\" data-portal-id=\"6331333\"><iframe style=\"border: none; height: 100%; width: 100%;\" title=\"Form\" src=\"https:\/\/js.hsforms.net\/ui-forms-embed-components-app\/frame.html?_hsPortalId=6331333&amp;_hsFormId=7e76a055-f602-47a7-8a47-016c1b2a93da&amp;_hsIsQa=false&amp;_hsHublet=na1&amp;_hsDisableScriptloader=true&amp;_hsDisableRedirect=true&amp;_hsInstanceId=e532846f-1035-4882-a6ae-d55d3d4c01d2&amp;_hsUtk=97a2b3ed50db067e32f25632f4186d07&amp;p=609&amp;elementor-preview=609&amp;ver=1769019484\" scrolling=\"no\" data-test-id=\"embedded-form-7e76a055-f602-47a7-8a47-016c1b2a93da\"><\/iframe><\/div>\n<\/div>\n<\/div>\n<div class=\"row text-center\">\n<div class=\"col-md-11 text-center\" style=\"padding: 50px 20px 20px 20px;\">\n<p class=\"padding-padrao\"><span style=\"color: #ffffff; font-size: 1em;\">Material gratuito, desenvolvido com apoio de especialistas. Consulte sempre um m\u00e9dico.<\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/section>\n<p><!-- fim DIV AZUL CLARO 1 ++++++++++++++++++++++++++++++++ --><br \/>\n<!-- fim DIV FORM ====================================== --><\/p>\n<p><!-- DIV FORM CONFIRMA\u00c7\u00c3O ============================ --><br \/>\n<!-- DIV CELESTE 2 ++++++++++++++++++++++++++++++++ --><\/p>\n<div id=\"thanks-section\" style=\"display: none;\">\n<div style=\"background-color: #fff8f4; padding-bottom: 0px; background-image: url('https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-content\/uploads\/sites\/29\/2026\/01\/bg-celeste2-linehearts.png'); background-position: center top; background-repeat: repeat-y;\">\n<div class=\"container\" style=\"padding: 50px 0px;\">\n<div class=\"row text-center\">\n<div class=\"col-md-9 col-md-offset-1\">\n<p style=\"padding: 10px 50px;\"><img decoding=\"async\" src=\"https:\/\/saude.novartis.com.br\/artrite-psoriasica\/wp-content\/uploads\/sites\/6\/2025\/11\/img-icone-check-ok.png\" alt=\"Card image cap\" width=\"40px\" \/>\u00a0<span style=\"color: #3493dd; font-size: 2em; font-weight: bold; line-height: 1em;\">Cadastro realizado com sucesso! <\/span><\/p>\n<p style=\"line-height: 1.1em; padding: 10px 50px;\"><span style=\"color: #000; font-size: 1.2em; line-height: 1.2em;\"><br \/>\nVoc\u00ea receber\u00e1 o <span style=\"color: #3493dd; font-size: 1.2em; font-weight: bold; line-height: 1em;\">Guia completo sobre a AME<\/span> em seu e-mail em instantes.<br \/>\nCom ele, voc\u00ea ter\u00e1 informa\u00e7\u00f5es importantes para conversar com o m\u00e9dico.<br \/>\nEnquanto isso, aproveite para conhecer mais sobre a <b style=\"color: #0078d4;\">Atrofia Medular Espinhal<\/b>. <\/span><\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<p><!-- fim DIV CELESTE 2 ++++++++++++++++++++++++++++++++ --><br \/>\n<!-- fim DIV FORM CONFIRMA\u00c7\u00c3O ============================ --><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Este guia foi feito para ajudar voc\u00ea a entender o diagn\u00f3stico de AME e agir&#8230;<\/p>\n","protected":false},"author":2,"featured_media":564,"comment_status":"open","ping_status":"open","sticky":false,"template":"single-largura-total.php","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[2],"tags":[],"class_list":["post-609","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-diagnostico"],"acf":[],"_links":{"self":[{"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/posts\/609","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/comments?post=609"}],"version-history":[{"count":74,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/posts\/609\/revisions"}],"predecessor-version":[{"id":760,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/posts\/609\/revisions\/760"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/media\/564"}],"wp:attachment":[{"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/media?parent=609"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/categories?post=609"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/saude.novartis.com.br\/atrofia-muscular-espinhal-ame\/wp-json\/wp\/v2\/tags?post=609"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}